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The invisible sufferers of ME FIGHTING FOR RECOGNITION FIGHTING FOR RECOGNITION Alison Chiesa speaks to a woman who has struggled with the illness for 20 years
[Final Edition]
The Herald - Glasgow (UK)
Author: Chiesa, Alison
Date: Dec 4, 2006
Start Page: 13
Section: Features
Abstract (Document Summary)

Time passed and the intervening years brought changing governments, scientific discoveries, and medical breakthroughs. But [Ciara MacLaverty] never recovered from "the flu". Today, at 38, she has yet to make any of her dreams a reality. Although unaware of its grim significance at the time, that date in December marked the start of a war with Myalgic Encephalomyelitis - a continuing struggle that has left Ciara largely bed-bound for two decades.

"This is a bit like using carrot juice or exercise to treat cancer, or talking therapy to treat Parkinson's disease, " believes Ciara, who spent the earlier years of her illness with a constant migrainetype headache, so severe that she would bang her head against the wall above her bed in a futile bid to relieve the pain.

"I have had to watch Ciara suffer over the years and she's as ill now as she was 20 years ago, " said [Madeleine]. "She has missed out on so much. I've gone beyond being sad about it. Now I'm just so angry because nothing is being done. This does a gross injustice to ME sufferers. I've been so frustrated I've even considered lying outside the doors of the medical research councils in protest."

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